Many of my readers and followers know all about my son Landon and his health issues we have battled and continue to battle. If you are new to my blog, you can click on OMS in the menu it will give you a detailed background about my son. OMS is a tricky syndrome, it hides beneath the surface and reappears when Landon gets a common cold or even when he is really tired. Although I haven’t seen any symptoms for about a year since he got his tumor removed and began monthly doses of steroids, the fear I have is always there. Some of the challenges I have been facing lately as a mom is the fear of what I can’t control, fear of the unknown, and learning to accept the fact that my son will never be “normal”. Many parents of children with special needs or syndromes and disorders say that you will go through a mourning period when your child gets diagnosed, and it’s true. You mourn the “loss” of the way your child was, and learn to accept the future and the obstacles you will face. Now I’m going to get really raw here for a minute and say how tired I am of hearing people say, “well it could be worse.” I mean that is such an audacious thing to say to a mother who has been through basically a war zone with her child, in and out of hospitals, and even questioned the mortality of her own child she gave birth to not that long ago. The truth is that I KNOW it could be much worse, because I’ve seen worse, being in and out of a hospital I have been faced with worse and it shook me to my core. When I take Landon to the oncologist every couple of months I see what some people’s reality is, children with ports and getting their chemo while my son runs around free as a bird. While I sit in the waiting room I look around, and I notice it is overflowing with sick kids, literally some have to wait outside because there is no more room, what the hell is wrong with this picture? Why does it seem like cancer is becoming an epidemic? Anyways, this is the whole point of my blog as you all know, to help everyone reduce the risk of serious illnesses by reducing the toxins in their home, food and beauty routine! Here are a few random favorite pictures of Landon, time sure does fly!!
It was so crazy looking through all of those pictures and seeing him grow! I didn’t really include too many from when he was two, because he was sick most of that time and I just didn’t capture too much of it on camera. Back to my point above, the truth is I am SO grateful that Landon is stable and doing well, but I still wouldn’t wish this reality on my worst enemy. It has been alomst a year since my little man had his tumor removed so he had a routine urine analysis last week to make sure another tumor had not returned. I felt sick all weekend, that familiar feeling I had when Landon was in the hospital. All my fears were coming back to the surface and I felt helpless, suffocated and broken down all over again. My husband and parents would reassure me but nothing breaks the state of mind your in when you are waiting for lab results, nothing. Landon’s urine came back good so he continues to be stable and we are hoping to ween him off of steroids in about four months, with hope that his OMS symptoms do not return!! This blog has turned out to be such an amazing outlet for me to vent about my frustrations, hopes, fears but mostly turn my son’s syndrome into something positive, and to remind everyone to spread the positive vibes because you never know what someone is going through underneath the surface!
For more information on OMS syndrome visit http://www.omsreasearch.org where you can also donate to help find a cure for this rare disease!! I also want to thank my faithful followers, readers and great friends I have made for the constant love, support and positivity you all give- it means more then you will ever know!! Peach & love always!!!